Boston Hope

While in the airplane I received my latest MRI results. Although I just had surgery, the tumor, though smaller, is still there (2.2cm x 0.7cm x 1.0cm) and displacing my pituitary gland. Though this was disappointing, I was also relieved to find that this is why I am feeling so many crappy side effects such as constant vertigo, short term memory loss among others. I am still waiting for someone to tell me how this is possible given that I had a more aggressive surgery not so long ago. I just feel like I cannot catch a break and it has been super hard mentally. I am lucky I have Trevor because he fights for me everyday even when I don’t have the strength to endure all these hardships. The good news is I met with Dr. Priscilla Brastianos at Mass General in Boston last week.  She told me these inhibitors are literally melting the tumors away. I finally had someone not only understand everything about my condition, but she genuinely cared. The plan is that I start these inhibitors as soon as possible. Of course nothing is that easy and I need to wait until January 1st when my insurance changes and also get a lot of tests to make sure I am safe to take them. I am PRAYING that my tumor doesn’t grow in that time or other medical issues pop up so that I can start taking these drugs. It's been hard to see the light lately but I came across  a quote that spoke to me from the documentary “The Mountain Within Me” that said, “Everyone has their own mountains to climb in life. Sometimes you find yourself stood at the bottom facing up at the seemingly impossible. Don’t Give Up….Just Keep Going. It will all make sense when you see the view from the top.”

 

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